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1 month post transplant update

It’s been a while since I’ve posted an update on Alex and for that I ask for your grace. We have been taking space to adjust to our new normal and are about 4 weeks into this post-transplant journey. His incision where they inserted the donor kidney is healing beautifully. There is a lot ofContinue reading “1 month post transplant update”

We got the call!

Update: Alex is still in surgery. OR Nurse called to say kidney is in. They’re still working on him but surgery is going well. Friends and Family, we need some prayers this morning.We received the call we have all been collectively praying for.They have found a viable kidney for my son Alex.The surgery will beContinue reading “We got the call!”

November 7, 2020

I successfully surprised Alex today with a birthday parade. He’s been really grumpy lately and I wasn’t sure if he was going to like it. The New Haven Police Department led the parade with their sirens and speakers. Family and friends decorated their cars and sent gifts. We had a (socially distanced, mask wearing) birthdayContinue reading “November 7, 2020”

October 28, 2020

Alex turns 13 today. It broke my heart to see him so frustrated on this milestone birthday as a dialysis patient in the middle of a pandemic. The team at CCMC are really sweet and did their best to make it special. #AlexsKidneyChampions #FindADonorForAlex #BeADonor #shareaspare #pleaseshare #AlportAwareness #AlportSyndrome #raregeneticdisease #ChronicKidneyDisease #CKD #ChronicIllness #EndStageRenalFailure #dialysisContinue reading “October 28, 2020”